Patient Support

Providing support to patients with Wilson Disease

Patient Support

gmp-orphan (GMPO) recognizes the outstanding efforts the many organizations that have dedicated themselves to improving the awareness of Wilson Disease and providing support to patients with Wilson Disease. The following organizations provide important educational resources and support services for the Wilson Disease community, as well as information about other rare disease.

Wilson Disease Association International (WDA)

Wilson Disease Association International (WDA)
5572 North Diversey Blvd.
Milwaukee, WI 53217
Phone: 866-961-0533 or 414-961-0533
Email: info@wilsondisease.org
Website: www.wilsonsdisease.org

Brazil

Brazil
Brazilian Association for Wilson Disease Patients
Brasil Associacao Brasileira dos Doentes de Wilson
Sonia Knopf / Maria Aparecida Mesquita Ribeiror
Rua Sao Joaquim, 188 Vila Galvao
CEP 07064-180 Guarulhos, S. Paulo, Brazil
Phone: 011-6451 7859
Email: associacao@doencadeWilson.org

Bulgaria

Bulgaria
Bulgarian Association Wilson Disease (BAWD)
Email: info@wilsonbg.org
Website: www.wilsonbg.org

Denmark

Denmark
Danish Wilson Disease Patient Association
Wilsonpatientføreningen
Email: info@Wilson.dk
Website: www.wilsons.dk

EuroWilson

EuroWilson
Online contact form: eurowilson.com/en/contact/contactus.phtml
Website: www.eurowilson.com

France

France
Bernard Pepin Association for Wilson Disease in France
Association Bernard Pepin Pour La Maladie de Wilson
Service de Neurologie
Hôpital Lariboisière
2 Rue Ambroise Paré
75475 Paris Cedex 10
Website: www.abpmaladiewilson.fr

National Reference Center for Wilson Disease in France
Centre National de Référence Wilson
Email: cnr.wilson@lrb.aphp.fr
Website: www.cnrwilson.fr

Germany

Germany
Morbus Wilson
Verein Morbus Wilson e.V.
Leiblstraße 2
83024 Rosenheim
Phone: 08031 / 24 92 30
Answering machine: 08031 / 4 38 76
Email: morbus.wilson@t-online.de
Website: www.morbus-wilson.de

Italy

Italy
Associazione Nazionale Malattia di Wilson
Email: info@malattiadiwilson.it
Website: www.malattiadiwilson.it

Poland

Poland
Polskie Stowarzyszenie Pacjentów z chorobą Wilsona
II Klinika Neurologii, Instytut Psychiatrii i Neurologii
Sobieskiego 9
Warszawa
02-957
Online contact form: www.chorobawilsona.pl/index.php?option=com_contact
Website: www.chorobawilsona.pl

Netherlands

The Netherlands
Dutch Wilson Disease Association
Phone: (033) 46 12 231
Email: info@leverpatientenvereniging.nl
Website: www.leverpatientenvereniging.nl

Romania

Romania
Wilson Disease Association Romania
Website: www.wda-romania.org

Serbia

Serbia
Humanity Assocation Wilson, Humanitamo Udruženje
Email: office@wilson.org.rs
Website: www.wilson.org.rs

Spain

Spain
Asociación Española de Familiares y Enfermos de Wilson (AEFE)
C/Avenida de la Constitución 82- 5º- 11º A
C.P. 46009 – VaLENCIA
Phone: 634582680
Email: asociaciondewilson@gmail.com and adewilson@hotmail.com
Website: www.enfermedaddewilson.org

Sweden

Sweden
Wilsonföreningen
Online contact form: www.wilsonforeningen.se
Website: www.wilsonforeningen.se

Switzerland

Switzerland
Morbus Wilson Schweiz
Email: wilson@hispeed.ch
Website: www.morbus-wilson.ch

United Kingdom

United Kingdom
Wilson Disease Support Group UK (WDSG-UK)
Email addresses available at: www.wilsonsdisease.org.uk/WDSG-P5.asp
Website: www.wilsonsdisease.org.uk

Related Organizations

Get In Touch

Find out more about GMPO, who we are and what we do.

Start typing and press Enter to search