Patient Support
Providing support to patients with Wilson’s Disease
Patient Support
gmp-orphan (GMPO) recognizes the outstanding efforts the many organizations that have dedicated themselves to improving the awareness of Wilson’s Disease and providing support to patients with Wilson’s Disease. The following organizations provide important educational resources and support services for the Wilson’s Disease community, as well as information about other rare disease.
Wilson Disease Association International (WDA)
5572 North Diversey Blvd.
Milwaukee, WI 53217
Phone: 866-961-0533 or 414-961-0533
Email: info@wilsondisease.org
Website: www.wilsonsdisease.org
Brazil
Brazilian Association for Wilson Disease Patients
Brasil Associacao Brasileira dos Doentes de Wilson
Sonia Knopf / Maria Aparecida Mesquita Ribeiror
Rua Sao Joaquim, 188 Vila Galvao
CEP 07064-180 Guarulhos, S. Paulo, Brazil
Phone: 011-6451 7859
Email: associacao@doencadeWilson.org
Bulgaria
Bulgarian Association Wilson Disease (BAWD)
Email: info@wilsonbg.org
Website: www.wilsonbg.org
Denmark
Danish Wilson Disease Patient Association
Wilsonpatientføreningen
Email: info@Wilson.dk
Website: www.wilsons.dk
EuroWilson
Online contact form: eurowilson.com/en/contact/contactus.phtml
Website: www.eurowilson.com
France
Bernard Pepin Association for Wilson Disease in France
Association Bernard Pepin Pour La Maladie de Wilson
Service de Neurologie
Hôpital Lariboisière
2 Rue Ambroise Paré
75475 Paris Cedex 10
Website: www.abpmaladiewilson.fr
National Reference Center for Wilson Disease in France
Centre National de Référence Wilson
Email: cnr.wilson@lrb.aphp.fr
Website: www.cnrwilson.fr
Germany
Morbus Wilson e.V.
Geschäftsstelle
Zehlendorfer Damm 119
14532 Kleinmachnow
Tel.: +49 30 80 49 84 86
Email: info@morbus-wilson.de
Website: www.morbus-wilson.de
Italy
Associazione Nazionale Malattia di Wilson
Email: info@malattiadiwilson.it
Website: www.malattiadiwilson.it
Poland
Polskie Stowarzyszenie Pacjentów z chorobą Wilsona
II Klinika Neurologii, Instytut Psychiatrii i Neurologii
Sobieskiego 9
Warszawa
02-957
Online contact form: www.chorobawilsona.pl/index.php?option=com_contact
Website: www.chorobawilsona.pl
The Netherlands
Dutch Wilson Disease Association
Phone: (033) 46 12 231
Email: info@leverpatientenvereniging.nl
Website: www.leverpatientenvereniging.nl
Romania
Wilson Disease Association Romania
Website: www.wda-romania.org
Serbia
Humanity Assocation Wilson, Humanitamo Udruženje
Email: office@wilson.org.rs
Website: www.wilson.org.rs
Spain
Asociación Española de Familiares y Enfermos de Wilson (AEFE)
C/Avenida de la Constitución 82- 5º- 11º A
C.P. 46009 – VaLENCIA
Phone: 634582680
Email: asociaciondewilson@gmail.com and adewilson@hotmail.com
Website: www.enfermedaddewilson.org
Sweden
Wilsonföreningen
Online contact form: www.wilsonforeningen.se
Website: www.wilsonforeningen.se
Switzerland
Morbus Wilson Schweiz
Email: wilson@hispeed.ch
Website: www.morbus-wilson.ch
United Kingdom
Wilson Disease Support Group UK (WDSG-UK)
Email addresses available at: www.wilsonsdisease.org.uk/WDSG-P5.asp
Website: www.wilsonsdisease.org.uk
Related Organizations
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